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Myeloma Stories

Michelle – San Diego, CA

My name is Michelle and I was diagnosed with Multiple Myeloma in 2010. I had always been an active person who maintained a healthy lifestyle through exercise and a good diet.

When the back pain started in 2009 I was told by my Primary Physician it most likely was a strain and sent to PT.  In 2010, while on a RV trip with my husband Dan in Oregon I again had unbelievable back pain. During a hike noticed tingling down my leg and I was unable to lift my left leg. I ended up in the ER in Bend, Oregon, and a MRI confirmed I had a collapsed vertebrae and a small bone fragment was pushing on my spinal cord. The collapsed vertebrae at the T12 which was caused by a plasmacytoma (a malignant plasma cell tumor).

After two surgeries and a 10 day hospital stay I departed Bend Oregon with a brace on for my back and the diagnosis of Multiple Myeloma, CANCER. How could I have cancer? One month prior I had ridden my bicycle 100 miles around Crater Lake. I was a healthy person, cancer! I climbed Mt. Kilimanjaro, Mt. Whitney, Mt. Elbert and others, mountains all above 14,000 feet. I had ridden my bike up Mt. Evans, over 14,000 ft. in a race. Physical activity was part of my lifestyle. How could I have cancer?

In 2012 I entered treatment. I spent the summer months in treatment all the while remaining as active as possible. Riding, swimming and hiking. I had a Stem Cell Transplant in September 2012 and achieved complete remission.

I spent 6 months on Revlimed maintenance but discontinued use as I was having problems with a high Eosinophill count and constant low WBC.

I ride my bicycle, hike, yoga, swim and love the outdoors. This summer we’re off to Colorado to climb some awesome peaks and ride our bicycles to high places. I will not let cancer win and will continue to look forward, not back. My motto is “Never put off till tomorrow what you can do today”

— Michelle

Categories
Myeloma Stories

Maura R. – San Diego, CA

My mom was diagnosed with multiple myeloma over 8 years ago. It was a real shock for our family as we have never heard of this type of cancer. After speaking to the oncologist he told me she probably had two years. It was terrible news and there is no way I was going to mention this to mom who hardly speaks English.

So I started doing my research about multiple myeloma and consulting with different oncologist. We made a decision to  proceed with a bone marrow transplant. My mom had two bone marrow transplants and that kept her off chemo, steroids and zometa for over 2 years.

She was living a normal life unfortunately it started again but for the past years she has been on 10mg of revlimid, steroid and every 3 months she gets zometa Fortunately what has helped the most is her positive outlook and a desire to live a normal life, she is a fighter and she is not letting this cancer take over her life. We just had our oncologist appointment and my mom is doing amazing. Every day I wake up thankful of how well she is doing.

— Maura R.