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Family Member Myeloma Stories

When Food Becomes the Enemy

I still cringe when I think of how the very food that was once used to nourish our bodies is now one of the primary causes for the many diseases that attribute to so many deaths of someone’s mother, father, sister or brother, and even child. I lost both of my parents to multiple myeloma, my father twenty-two years ago and my mother just seven short months ago. The doctor who diagnosed my mother said that we would have stood a greater chance at winning the lottery than having both parents die of the same cancerous life ending disease. It’s just not common, he said. And yet, here we are. No doubt as a result of losing both my parents to such a horrific disease, it heightened my alert in terms of how I would be affected from a hereditary standpoint. Although I am fully aware of the fact that cancer cells lie dormant in everyone, I couldn’t help but wonder how significant of a role those cells would play in my overall genetic makeup due to my parents both having been victims of multiple myeloma.

It is still unknown as to how one comes to have multiple myeloma. Yet I understand that even though genetics make up a very small part of an individual contracting the disease, the manner in which we treat the disease is extremely detrimental in terms of living out a successful life expectancy. I knew nothing about multiple myeloma when it so viciously infected my father’s body. I knew only that it was a blood cancer that resulted in destruction of the bones. More importantly I knew that eventually, sooner than later, my dad would die from it.  Fast forward twenty-one years later, after my mother was diagnosed, I vowed that I would make a greater effort to educate myself about the very disease that somehow has infiltrated its way into my family heritage.

My mother’s diagnosis caught me and my siblings completely off guard. By the time she was diagnosed, myeloma had already ravaged her body and a vast majority of her blood was diseased by as much as 75{662f9154478519430121bf9cce4d6b9f8ccf730187d765d88c6c0fa44a9f95f5}. Unfortunately, because everything was happening so quickly, we didn’t really have time to completely process the reality of what was taking place. We simply had to act by putting matters in order.  As a family, we chose not to treat my mother with conventional medicine. She had suffered a brain aneurysm twelve years prior and was not a suitable candidate of the harsh side effects that she would most likely endure; thereby resulting in a much more degrading quality of life. And, the fact of the matter is we just were not willing to put her through that. So, we let nature run its course and my mother passed away as humanely possible as we could manage under the circumstances.

Although myeloma was not my mother’s only battle, it was the one of which would ultimately defeat her. And even though I knew that the odds were not in her favor, I couldn’t help wanting to take an approach that I thought would be a positive contributing factor to whatever time she had left with us. Like a huge majority, my mother grew up eating the same SAD (Standard American Diet) diet that many are traditionally prone to consuming. And yet it was by no means ever truly a diet that was conducive to overall good health, it was still not the SAD diet, in the days long ago, of which we have come to know as a lethal deadly force wreaking havoc in the lives of so many today.

Out of sheer desperation and a need to feel as though I was doing SOMETHING worthwhile, I made a last-ditch effort to implement some healthier food choices in my mother’s diet, but after being accustomed to eating in the same manner for 72 years and not really understanding the true value that comes with embracing a different way of eating for a better quality of life–coupled with the prognosis we had been given–there was very little to no impact made in my attempts. It was too little, too late. This way of eating simply did not appeal to my mother. Still, I am convinced that had we known in time, and taken necessary measures long before we did, my mother would still be with us—at least for now.

I, personally, have adopted a whole food plant-based diet consisting of vegetables, fruit, whole grains, legumes, nuts and seeds, in an all-out effort to change the course of my family genes, in addition to ensuring that I am eating for optimum health. I stand firmly rooted in the belief that the body really does have the ability to repair itself and that we must be ever so diligent when it comes to doing our part to assist it in doing its part.  I also believe that we as a society, on the whole, have been far too lackadaisical and have become extremely and outrageously dependent on the medical professionals when it comes to our approach in common sense heath practices. Yet, I tend to think that much of that has to do with a lack of education, more so than a willful in adherence in regards to eating for optimal health and wellness. It wasn’t easy giving up the foods I enjoyed for so many years of my life, but what made it a whole heck of a lot less challenging is considering the demise of which BOTH of my parents met in their life’s end and the sickening state of affairs concerning our food and agricultural issues.

As a result of eating WFPB (Whole food plant-based), I have noticed some significant changes. But one of the most important changes is the decrease of the level of inflammation I experience in my body, overall.  Since cancer is characterized by chronic inflammation in the body, certainly this can be viewed as a thing of value. Because I am eating foods that are plant based and brimming with nutritional contents, my body responds favorably by possibly reversing and or preventing any further cell damage of which I may encounter if, by choice, I was still eating a diet dead by nature and devoid of any life sustaining nutrients, whatsoever.

I advocate a diet rich in WFPB because I took it upon myself to get educated on how it would assist me in obtaining my health goals. And after doing so, I am thoroughly convinced that it will prove to have a very dominant impact on my level of success in safeguarding against harmful contaminants from foods that set up disease in the body and ultimately lead to a premature death. I loved my parents dearly and they taught me a lot of valuable life lessons. But what they did not teach me is how to eat to live; for how can one teach what one does not know. Rest in peace Mama and Daddy. I will be the voice you never had.

Sharon W.
North Las Vegas, NV

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Myeloma Stories

Doug K. – Lake Stevens, WA

My mom was diagnosed with Multiple Myeloma in 1995. She and my dad told my brother, sister, and myself what the doctors had found and that they only gave her up to 3 years to live.

My mom was a very strong woman. With all her treatments (chemo, radiation, stemcell transplant) she fought and fought. We got the greatest news ever her cancer had gone into remission.

January of 2014 my mother was not feeling well, my dad took her to the hospital where they ran many tests. The news none of us wanted to hear her cancer was back and very aggressive. My mom passed away 4 days after that doctors visit.

Due to the great doctors at Swedish Hospital Seattle and their abilities we were able to spend 18 more years with our mom. Not to mention the great strength and willpower my mother had. To those who are experiencing this, or have lost a loved one to Myeloma, my prayers and most heartfelt thoughts are with you.

– Doug

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Myeloma Stories

Anna K. – Orlando, FL

December 2013, our family was gathered in the living room when my dad gave my brother and I the shocking news that he was diagnosed with Multiple Myeloma. Needless to say it was not the type of Christmas we were expecting.

What was unique about my dad’s situation is he didn’t have any of the symptoms related to MM, no bone problems, no kidney problems, they caught it when he went in for a check up due to a sinus problem he couldn’t seem to kick.

The next 6 months were a series of doctor’s appointments, chemotherapy treatments and then in the Summer of June 2014 he had his first Stem Cell Transplant.

He went back to the doctor for testing in October 2014 to find out of the Stem Cell Transplant had worked and if the cancer was in remission. He was getting good reports all around until 2 of the 5 tests came back with unsatisfactory results. We had to start the process again, more chemotherapy, new drugs, and another stem cell transplant coming up this summer.

It’s been a hard road to walk.  Thankfully we have a solid support system. This is something no one should have to endure alone. We have to take it one day at a time that’s all we can do.

–  Anna

Categories
Myeloma Stories

Viorica C. – Bucharest, Romania

I loved my husband. We lived together for 43 years and yet, at the age of 59, I was still in love with him. He was a handsome, athletic man who would run every morning for 2.5 mile before going to the office. It was hard to believe that such a sportsman would die at the age of 64, only 30 months after being diagnosed with multiple myeloma.

It was on Christmas’ Eve when we found out the dreadful news. Before going to the G.P. doctor we thought it was a cold because he was coughing intensely and was unusually pale. The doctor immediately channeled us to the hematologist who informed us that my husband has multiple myeloma. It was like a shock.

The biopsy of the bone marrow revealed Multiple Myeloma State III, with high level of proteins and Hg around 6-7. At that moment, it crossed through my mind that 6 month before the diagnosis, Mihai had a rash on his skin, big brownish spots on his legs and hands. We thought it was a dermatological problem and went to a private clinic dermatologist. After consultation, he decided Mihai had probably got an infection from our Dalmatian dog whose paws I use to clean in the bathtub. For the doctor, it did not matter when I told him that I disinfect the bathtub each time with good quality detergents. He maintained ” his professional verdict” and even got a bit upset because I dared to challenge him. He gave us some solution and indeed, after a while, the rush was gone.

I am still living with the sorrow that, may be, I should have asked for a second opinion at the time or simply asked for an appointment with a hematologist. ( I would not have made reference to this story if I had not read Sharon F’s story about she waking up one day with a rash on her body. Perhaps there is something to learn if more than one person talks about the same symptoms ).

For me, the next 30 month after my husband’s diagnosis, was the most tormenting in my life. The feeling were mixed up, love, compassion, sorrow and desire to do whatever it takes to help him. There were many time when I felt hopeless. There were times when I told him only parts of the truth and for that I still question myself, have I acted well or wrong. At the time, I was having a very demanding job as a senior manager. For me, the most important thing was to be with my husband for as long as possible but also, to a very high extent, to keep my position. There were times when I knew I was loosing control over my office performance. I will never forget one day when we went to the hospital to have a endoscopy of his lungs – in order to assess the spread of the malignant cells. As soon as we arrived there, I received a call about an office emergency and, against my will, I had to run to the office. After all, keeping my position meant better treatment, better medication – paid by my company medical insurance – access to treatment abroad. How to cope with this, as to be able to meet your medical and financial needs and your own emotions, your vows , your conscience. Then one day, after 30 months of experimenting Velcade, Lenalidomide, Thalidomide and a salvage treatment at the Wilhelmine Spital in Vienna, my husband’s life ended. I was 60 years old and my life was gone along with him.

– Viorica